We have just completed a Year of Care pathway model and needs mapping exercise for progressive supra-nuclear palsy (PSP). PSP is a degenerative neurological condition that affects eye movement, balance, mobility, speech and swallowing.
This project was commissioned by the PSP Association and is part of NCS’s work to support and give higher profile to rarer long-term neurological conditions.
The PSP Year of Care pathway
This pathway model gives health and social care professionals national guidance on PSP for the very first time. It can be used as both a model of best practice and an educational tool.
The model had detailed input from people living with PSP, consultants and clinicians. It breaks PSP down into four stages and shows:
- the different ways this complex condition can develop
- the impact PSP has on a person’s life overall
- what support and services are needed at each stage
The pathway also includes a yearly budget. This is built from a series of assumptions about service usage: things like when somebody may need to visit a neurologist, the type of appointment they will need and the likely cost of this.
This model will provide a framework for professionals and commissioners to deliver the right services, in the right way, at the right time, for people with PSP. The PSP Association will also use it to inform some of their future work.
For more information about this project or how we support rarer long-term neurological conditions, please contact Charlie Peel, NCS Project Officer.